Beacon Pharmacy provides medications and supplies for people who have inherited (genetic) bleeding disorders including hemophilia, von Willebrand Disease, and certain platelet disorders. All of these conditions are present from birth and last a person's whole life. While there is treatment, there is no cure.
Von Willebrand Disease (VWD) is believed to be the most common bleeding disorder, affecting as many as 1 in every 100 people. Hemophilia is much rarer - there are only about 17,000 people in the United States who have Hemophilia A (factor VIII deficiency) or Hemophilia B (factor IX deficiency). Rarer still are the inherited platelet disorders. These include Bernard-Soulier Syndrome, Glanzmann's Thrombasthenia, and Platelet Storage Pool Deficiencies.
Hemophilia of Georgia provides information as well as programs and services for people in Georgia who have inherited bleeding disorders.
The Canadian Hemophilia Society and the World Federation of Hemophilia are good resources on the web to read about bleeding disorders. The National Hemophilia Foundation offers HANDI, an information resource center with specialists who can answer questions about bleeding disorders and provide written materials. They are available by phone Monday through Friday, 9 a.m. to 5:30 p.m. EST. Their toll-free number is 1-800-42HANDI. HANDI also responds to e-mail requests at firstname.lastname@example.org.